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Posts with tag tragedy

Cancer returns home

After several weeks of hiding and down time, a few weeks ago I made an official announcement to the non profit organization that I founded Indie Music For Life and its two entities Laughs For Life and Indiegrrl. I dropped off of this blog page for a month and am ready to write again. I needed a break. A break to sort through things. To sort through life.

When you or a loved one are diagnosed with cancer it changes your life. Finding out you have cancer takes your breath away and from that point your breath is the most valuable thing to you in your life. Breath and time. Nothing is normal any more. Not your dreams, your nightmares, and not your waking moments.

A personal diagnosis of chronic myloid leukemia in February sent me into a whirlwind of emotions. At that point, all the fear, terror, and stomach knots from my past rounds of cancer came back. Nobody free of cancer could ever appreciate how utterly devastating the news of contracting it could be and the news that it has returned is even more devastating because you know what uphill climbs you must make again. Once you have been diagnosed with cancer you always look over your shoulder for the beast to return. He has caught up with me several times now and so I am speeding up in my race trying to see who is the best long distance runner. Every ache you feel or every little un-ordinary thing that happens with your body sends you into " What If " mode. It is extremely hard living in that mode of thinking but you can't avoid it.

My past struggles with cancer were very private. But then I was not the head of a non profit organization that raises money for cancer research and educational awareness on the powers of music and laughter as therapy for cancer patients. I wasn't the head of the largest networking group of female songwriters known as Indiegrrl that has since become a part of Indie Music for Life. Laughs For Life had not even been thought of yet and now with the direction and help of good friend and comedian Shelly Ryan it is now a reality. I hadn't even started my music career. Having cancer is what lead me to pursue my career in music and chase my dreams. It wasn't until I started working on my CDs that my cancer became really public other than with my close friends and family and then working to set up the Indie Music For Life non profit put it out there even more.

Continue reading Cancer returns home

Read This: What You Don't Know Can Kill You

WOW, what a book -- a perfect guide for those just embarking on a medical journey and a valuable resource for people like me -- already surviving a major illness -- who wish to better manage their health care for all of time.

Author Laura Nathanson, MD, wrote What You Don't Know Can Kill You: A Physician's Radical Guide to Conquering the Obstacles to Excellent Medical Care in honor of the husband she lost after a series of misdiagnoses and for everyone wishing to prevent such tragedy in their own lives.

Nathanson offers readers techniques for identifying signs of misdiagnosis and misleading analysis of symptoms. She shares tips for preventing medical miscommunication, keeping safe in the hospital, and choosing health care plans without falling into the uncovered services trap.

The allure of this book is the easy, non-medical approach Nathanson uses as she urges everyone facing the medical world to take charge of an often inpenetrable system. For the patient who is no stranger to this world, Nathanson's words will ring abundantly true.

"When I look back on that long period of delayed diagnosis and how we were then and later bounced around from one medical specialist to another, the image that pops into my head is that of a slightly mad, grotesque volleyball game -- with the patient as the ball," she writes.

For the patient new to medical confusion, Nathanson's words will impart volumes of truth.

"Here's what I've learned, and what you must learn if you wish yourself and your loved ones to survive a bout with serious illness," she reports. "No matter who you are, physician or not, lucky or not; no matter how rich, famous, successful, good-looking, innocent, kindly or powerful; no matter how close and trusting the relationship you have with those providing your medical care -- you cannot rely on today's medical system to keep you healthy, safe and alive."

Amen.

I Hate Tumors: JANE magazine essay captures readers

Tears are streaming down my face. I can't stop them, and I'm not sure I want to. In a way, I want to feel the tragedy of life lost to cancer because it makes it all real. It makes it personal. It makes me realize the same tragedy could happen to me, my family members, my friends. It makes me want to make a difference even more now that I've seen the chilling pictures of a young woman dying of cervical cancer than moments earlier when I was moved mostly by my own breast cancer journey.

I first read about Heather Lyn Martin on the JANE magazine website, home of a beautifully-written story -- I Hate Tumors -- by Sara Lyle, long-time friend of Heather and senior editor for JANE, a publication for 20-something women. Sara's words powerfully depict the life and death of her friend, stricken with a disease she was sure she would beat. So sure, in fact, she asked Sara to help tell her success story.

Sadly, Heather never got to tell much. Because she died much too soon, at the age of 28. So Sara told the story through her own words and photos -- the same ones responsible for my tears -- and has just recently written a second essay, one year after her first story started reaching young people everywhere.

Sara wrote Why I Still Hate Tumors after inspiring many young women to open their eyes to the realities of a deadly disease. Her words serve to raise awareness about the dangers of cervical cancer -- and the HPV virus that causes it -- and to point women in the direction of resources critical for preventing and conquering the disease.

Sara, because of the death of her dear friend, is saving lives with her message. And she just may save yours.

To see all that Sara has to offer in the fight against cervical cancer and other hated tumors, visit her I Hate Tumors website.

Paris Hilton, Bebo and cancer top Google searches

Who and what was the most googled in 2006? The Year-End Google Zeitgeist top ten lists for general and news searches on the Internet this year include Paris Hilton and Bebo -- and cancer.

Of the celebrities most searched for, Paris Hilton outranked Orlando Bloom and the social networking site Bebo outranked MySpace. In the news category, cancer ranked as the third most searched for topic, before podcasting, autism, Hurricane Katrina, and bankruptcy.

The top ten Google searches were, in this order: Bebo, MySpace, World Cup, Metacafe, Radioblog, Wikipedia, Video, Rebelde, Mininova and Wiki. The top ten Google news searches were, in this order: Paris Hilton, Orlando Bloom, cancer, podcasting, Hurricane Katrina, bankruptcy, Martina Hingis, autism, the 2006 NFL Draft and Celebrity Big Brother.

Surprised to see Paris Hilton topping the list of news searches? Sadly, me neither. Personally, I am not certain that she has ever done anything newsworthy, other than having proven a supreme talent for the uniquely cunning ability to stay in the headlines for no particularly meaningful reason.

It is substantially interesting that cancer was the third most searched for news topic this year. I know that those whose lives have been touched by cancer can feel very alone, and if this proves anything, we are certainly not alone in trying to sort through the many issues linked to cancer.

Power of connections makes for powerful healing

My friend called me last night as she was having a miscarriage. She had been to the doctor, heard no heartbeat, and learned via ultrasound that her baby had stopped thriving weeks ago. Her doctors told her what to expect -- bleeding and cramping and contractions and possibly a D & C -- and she was experiencing some of these inevitable symptoms as we spoke on the phone. My friend called me because the same thing happened to me six years ago -- and when she remembered this, she dialed the phone from a state thousands of miles away. And despite our distance, our connection was close enough for comfort.

Continue reading Power of connections makes for powerful healing

Husband blogs memory of wife and a life that goes on

Dori died this past November after a long battle with breast cancer that recurred and spread and ultimately took her from her husband and two young children. I never knew Dori -- she was one of my blog acquaintances -- but I gather from her words and the hundreds of comments that were left on her site that she was full of spirit and courage and grace.

Dori died gracefully at her home, with the assistance of hospice and a loving network of family and friends. She is no longer able to write in her blog -- No Bra Required -- and I miss her abundant strength and humor in the midst of a exhausting journey. But something happened that I think has eased the transition for those who are struggling with the death of a woman much too young to have left this world -- Dori's husband continued to write. He continued Dori's blog for a bit and then started his own personal blog where he shares the peaks and valleys of a life without Dori and with two kids he is raising on his own. Winter to Spring is insightful and touching and sad and happy. It chronicles birthday parties and school plays and Mother's Day too. It reveals feelings and hopes and wishes and sorrows. The tragedy of it all -- the death of Dori -- is devastating. The upside of the tragedy -- the resilience of a family, the lessons learned, the hope for a brighter tomorrow -- keeps me coming back for more. For more of a story that can break my heart and warm my heart all at the same time.

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