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Posts with tag voices

Happy World Cancer Day!

I guess the concept is happy -- the public urging for our world's policy makers to make cancer a top priority -- but the fact that becomes all too apparent on this World Cancer Day is quite sobering. More than seven million people die from cancer and close to 11 million new cases are diagnosed worldwide each year. In 2006, cancer killed more people than AIDS, malaria, and tuberculosis combined.

So today is both happy and sad. But for now, let's focus on the happy.

The Geneva-based International Union Against Cancer (UICC) and member organizations in 86 countries are launching a five-year campaign to impart life lessons to children so they can prevent cancer later in life. Parents are critical in this campaign and must take an active role in teaching their children techniques for saving their lives.

Forty-three percent of cancer cases can be prevented through healthy lifestyles that begin in childhood. The World Cancer Campaign slogan -- Today's Children, Tomorrow's World -- underscores the possibility that a concerted effort among world leaders, parents, and their children can make a real difference through four key actions -- providing a smoke-free environment for children; ensuring children keep physically active, eat a healthy diet, and avoid obesity; educating children about vaccines for virus-related liver and cervical cancers; and limiting children's exposure to the sun.

Former First Lady Barbara Bush, Her Royal Highness Lalla Slama of Morocco, Nigerian President Olusegun Obasanjo, and tennis star Steffi Graf are some of the powerful voices powering this campaign that UICC president Dr. Franco Cavalli says can save so many lives if embraced by those at the highest decision-making levels.

"Complacency and inaction on the part of world community will effectively contribute to more than 10 million deaths every year by 2020," he said.

BBC quiz show host Magnus Magnusson dies of cancer

Magnus Magnusson, former host of the BBC quiz show Mastermind, died just days ago after a four-month battle with pancreatic cancer. He died peacefully at his Glasgow home at the age of 77.

Magnusson, a journalist, author, and presenter, is best known for his 25 years of work on Mastermind, a show he called an "undemanding program for insomniac academics late at night." His presence defined the program, a prime time BBC show watched by more than 22 million viewers, from 1972 until 1997.

"Magnus Magnusson was one of the defining faces and voices of the BBC," said Mark Thompson, the director general of the BBC. "To the contestants of Mastermind, he was a tough but always fair question-master, but behind this screen persona there was a family man of tremendous warmth and humanity."

Magnusson, who focused on his writing career after Mastermind ratings began to slump and a new host took his place, first became ill in 2004 when he was hospitalized for emergency abdominal surgery. He recovered from this episode but was diagnosed with cancer last October, on his 77th birthday.

Magnusson, who coined the quiz show phrase, "I've started, so I'll finish," is survived by his wife of 52 years and his four children.

Concert benefit held for headline-making Abraham Cherrix

Teenager Abraham Cherrix made national headlines recently with a legal battle that earned him the right to fight cancer on his own terms. Cherrix, 16, who chose to treat his disease with alternative treatments after traditional therapy failed to cure him of Hodgkin's disease, was told by the courts that his choice was not acceptable -- that he must undergo higher doses of chemotherapy in combination with radiation and followed by stem cell transplant. Cherrix ended up a winner in court and is currently receiving the therapy of his choice. But despite the legal win, Cherrix and his family are losing financially.

The Cherrix family owns a kayak company in Virginia, and spring and summer are peak seasons. Since the family had to close shop on many occasions due to court appearances, profits suffered. So on Sunday afternoon, local musicians headlined a fundraising concert -- billed as Voices for Choices -- to help with medical and court costs. Cherrix could not attend -- he's in the midst of treatment in Mississippi -- but the show went on. And while the money raised is not enough to cover all outstanding bills, it is enough to remind the family of all the caring people in the world.

Reports from family indicate Cherrix is doing well with treatment and that his tumor is shrinking. If he continues to make progress, he may be able to return home soon -- so he can thank those whose support is so much more than money can buy.

Drive-thru mastectomies: Jewel lobbies for better women health care

Singer and songwriter Jewel sat down with ABC News This Week's George Stephanopoulos to discuss her support of a bill that will allow women to stay in the hospital at least 48 hours after a mastectomy. Called drive-thru mastectomies, the current practice of discharging women hours after surgery does not allow women sufficient time to heal before being released from the hospital.

During the interview Jewel placed the blame on insurance companies and HMOs who have decided that a mastectomy is not major surgery but an outpatient procedure. You have got to be kidding me, what an absurdity.

As Jewel stated, "This certainly isn't a merely feminist issue. This is about the care of our loved ones."

I don't see it as much a feminist issue as simply a matter of compassionate, and in this case, safe health care of mothers, wives, sisters, and daughters. The obnoxious practice of bean counters to decide that any major surgery is an outpatient procedure to save on health care expenses has been going on far too long.

Jewel will travel to Washington to help deliver 12 million signatures to Congress to support a health care bill that requires insurance companies and HMOs to cover the cost of proper care for women undergoing mastectomy. The VOICES: Jewel Lobbies for Breast Cancer Bill interview is available as video for viewing online.

Hurricane Voices raises consciousness, incites public action

I love the terminology used by those behind the scenes at Hurricane Voices. This is where I first read the words breast cancer dancer and where individuals have gathered to advance the rebellion against breast cancer. The content on this site is powerful, edgy, and truly inspiring -- it incites public action. And it makes me want to jump up and do something -- now. To break down the barriers to progress in pursuit of the causes and cures for breast cancer -- which is the whole purpose of Hurricane Voices.

Hurricane Voices began because of one woman -- Lois Egasti, a wife and mother living with metastatic breast cancer. Lois, who passed away on April 15, 2003, knew she was not alone and felt the need to take a stand against the disease. So she put her urge into action and formed this not-for-profit organization. And in just four years, a great community of voices emerged -- voices that have helped raise support and participation in far-reaching programs and events.

Hurricane Voices offers on its website a family reading list, a regular newsletter, an empowering overview of breast cancer and its statistics, and a sampling of various myths surrounding breast cancer. Hurricane Voices provides direction for involvement in unique conferences -- such as When a Parent Has Cancer: Strengthening the School's Response which helps school systems support families affected by parental cancer and Breast Cancer: Truth & Consequences, a conference that challenges the status quo concerning breast cancer. Hurricane Voices initiates thought-provoking public awareness campaigns and strives to inform the public that the disease we call breast cancer is a very serious illness.

Every day, more people are being diagnosed. Every day, more people are dying. Yet we are not beating this disease -- in fact in the time it takes to brush our teeth or drink a cup of coffee, another person has died of breast cancer. And this is what Hurricane Voices wants us to know. This and the fact that well-meaning, misconstrued survival rates in the 90 percentiles only extend for five years. And five years is just not enough.

Powerful -- that's what Hurricane Voices is -- powerful. And each of us can contribute our own power to this organization by becoming a Hurricane Voice. So speak up -- by simply clicking here.

Chemobrain may explain mental fogginess, forgetfulness

I have heard the term chemobrain many times -- even here at The Cancer Blog when Dalene wrote about it. And I've started using the terminology myself -- to explain my new-found odd behavior. Like when I put a carton of ice cream in the refrigerator with no recollection of it. And when I took a cap off a pen, couldn't find it, and discovered it on top of an egg carton in the refrigerator. I don't think this is a refrigerator theme -- just a coincidence -- because I've also lost a clipboard at work, forgotten to hand a guest her glass of water immediately after I prepared it, lost library books and movies, and failed to remember responsibilities time and time again. This may seem like minor forgetfulness -- this is what my oncologist believes may be at work -- but for me, this is odd. I have always had a good memory, have always delivered on my promises, and have never felt as scattered as I do now. So I call it chemobrain -- a good excuse, I figure -- and am now trying to determine what exactly this word means.

My oncologist tells me he doesn't really like this term. He thinks it puts a negative spin on regular functioning. He believes those of us who have experienced chemotherapy look more closely at our post-chemo behavior and may interpret quirky stuff as more serious than it is. It probably existed before chemotherapy, he says. But now, we are more sensitive to it and find chemotherapy a good explanation. He may be right. But for me, something in my head has definitely been altered.

One patient advocate for Hurricane Voices: A Breast Cancer Foundation believes that something doesn't have to be scientifically proven to exist. And while chemobrain may not be completely proven, there are still studies that support its existence -- which manifests itself through aging-type memory problems, forgetfulness, distraction, and loss of the ability to calculate quickly. Some studies show that 20 to 30 percent of women who undergo chemotherapy for breast cancer, and some who receive similar treatment for lymphoma, score lower than average on mental function tests for as long as 10 years after chemotherapy. ''There's enough data now to at least know it's a real effect,'' said Dr. Ian F. Tannock, a psychiatrist who has studied this issue at Princess Margaret Hospital in Toronto. Some suggest that typical aging may be at fault -- and for premenopausal women who may be rushed into menopause, this effect may be due to hormonal issues. Regardless, it seems to stem from chemotherapy -- somehow. And somehow, this topic needs more attention, more research, and maybe a more positive name.

CBS cares about variety of issues, including cancer

I recently learned that the CBS website features a whole section of public service announcements about various topics -- such as child abduction, depression, HIV/AIDS, menopause, osteoporosis, and heart disease. But what first caught my eye when I was visiting this site was the topic of breast cancer -- because this is the disease I am fighting. And then I spotted a section about colorectal cancer. I was intrigued about a television network's commitment to public health issues. So I kept reading and learned a thing or two about the CBS Cares initiative -- that is also delivered through television spots.

I learned that hundreds of hours have been spent researching each featured subject. And I learned that experts in each field have been consulted and interviewed for accurate and up-to-date information. I found that the basics of each topic are included on the website as well as detailed information that viewers might not otherwise know. For breast cancer, readers can learn about breast cancer in general, about early detection, and about risk factors. And there are video clips of celebrity spokespeople -- like Marg Helgenberger and Melina Kanakaredes -- who share their voices on the topic. For colorectal cancer, readers can gain insight into the prevalence of the disease by region. They can learn about polyps, about warning signs, about treatment options, and about survival rates. And celebrities Stockard Channing and Charles S. Dutton voice their messages about this disease. Doctor interviews and information from the American Cancer Society are sprinkled into the content of these very thorough, informative, and enlightening pages.

Dr. Jay Winsten, Associate Dean and Director of the Frank Stanton Center at the Harvard School of Public Health says, "It is truly unprecedented for a television network to create a website that draws so extensively and effectively on the expertise of numerous world-leaders in pubic health research." And now, CBS has set the precedent.

Handbook delivers dose of hope

There is something about reading stories about other cancer survivors that helps me in moments of despair. Sometimes I look to the blogs that I read regularly -- blogs that capture the essence of realities that are not my own -- and I feel somehow comforted. I gain perspective and can remove myself a bit from my own turmoil. I gather strength and hope from others who struggle like me. I absorb the words written in these journals and see the photos of real people with real struggles and the big picture becomes clear to me -- breast cancer is widespread and far-reaching. And because of this, I have a lot of company of my path of uncertainty. This is what soothes me.

Books help me too -- the kind of books with little snippets of advice and wisdom from other survivors. Like Hope Lives! The After Breast Cancer Treatment Survival Handbook. My favorite chapter is about recurrence. There are passages from women who have had breast cancer two and three times and these strong women remind me that I if necessary, I can fight again and again and again. This book is humbling, sobering, and powerful. The voices that inhabit the pages put a bounce in my step and peace in my head. Hope does in fact live.

Breast cancer survivors voice journeys on stage

Five women.  Five different stories and experiences.  Five breast cancer survivors.  All sharing their messages of struggle and hope and survival in ways they may not have imagined when they first gathered in September 2004 for a writing and theatre workshop with Sacred Cliffs Productions. They debuted a stage performance in December 2004 titled Bosom Buddies: An exploration of breast cancer in the words of survivors and were met with a tremendous response.  After much regional media coverage and offers to tour the New England area with their inspiring messages, Sacred Cliffs is committing their work to a screen adaptation called Getting It Off Our Chests.

Sacred cliffs are those moments we all know so well -- moments when something life-changing happens in our worlds and our only choice is to step off the cliff into uncharted territory.  We all handle these cliffs differently.  Some jump off with eagerness and excitement; some with uncertainty; some with fear and dread.  Regardless, we all have a story to tell once the jump is complete. Just like these five women who share with their audiences stories full of courage, laughter, fear, pain -- stories about life beyond breast cancer.

Getting It Off Our Chests, funded by a non-profit organization, is told by the women themselves, in their own words.  Already, thousands of people have witnessed the wonder of this performance -- a performance that will surely touch the lives of all who hear the empowering voices of these five women.

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