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Posts with tag volunteers

Women leading the fund raising

While it is true that women are far outnumbered in high level management positions in top 500 fortune companies, it is the backbone of the women in this country that lead the fund raising efforts in non profits. Women last year accounted for one out of 13 clout positions as an executive vice president or higher in the 500 largest U.S. companies. This figure was up from one in 40 as recently as 1995. Back then only one of those companies had a female chief executive officer and today seven do.

Women account for a higher percentage of executive positions in larger, self staffed non profit organizations. In 2005, the Non-Profit Times' "Power & Influence Top 50" list named the 50 top senior level executives in the non-profit sector and 26 were women. The role of women in non profit organizations was alive and well long before the concept came to exist. In the United States, the non profit sector encompasses an enormous range of organizations engaged in education, health care, research, the arts, religion, the environment, civil rights, and human services. The historical role of women in these sectors has always been significant and has evolved as the resources of the nonprofit sector have expanded and become formalized.

Women affirm their belief in humanity by providing services to millions of people every year, day in and day out. Many of the executive directors, board members, staff, and volunteers of these human services organizations are women, and they provide the backbone support for our community services.

As the major season for fund raising kicks off to bring in funds for cancer research and awareness, my many applauds to the multitudes of women, and also the men, who take their efforts seriously and have a strong commitment to community and a better quality of life to us all.

Marathon runners face skin cancer risk

It's not surprising marathon runners face an increased risk of skin cancer due to long-term sun exposure. What's surprising is that so many are not taking measures to protect themselves from the sun's damaging rays.

A team of Austrian researchers, all of them dermatologists, became interested in studying long-distance runners when they realized they had collectively treated eight ultra-marathon runners with malignant skin cancer over a period of 10 years. All researchers are themselves enthusiastic runners, and two of them participate in marathons. The topic was near and dear to their hearts.

Research was conducted on white runners, so it is unclear if the findings -- listed below -- apply to black runners.
  • Only 56 percent of runners in the study reported wearing sunscreen. Most were unaware of the increased risk to their skin -- and even the running researchers report it is good to be reminded to wear the right gear and regularly use sunscreen
  • Many runners race with a lot of skin exposed. And sometimes training clothing covers different areas than racing clothing. Shoulders that are covered during training may be exposed during the long hours of a marathon. During triathlons, most wear a bathing suit for the duration of the event, leaving most skin susceptible to burning. Runners can lower their risk by training during morning and evening hours and wearing water-resistant sunscreen. They can wear clothing made of new fabrics that screen harmful ultraviolet rays.
  • It's possible that endurance athletes may have suppressed immune systems caused by repeated tissue damage, leaving them more vulnerable to skin cancer.
While some marathon runners take pride in a bronzed skin -- proof they are running in the elements -- researchers hope runners will consider the risk they face. In some races, volunteers offer to quickly apple sunscreen on athletes who don't want to lose precious seconds as they race for the finish line. It's a start.

Cancer survivor receives extreme makeover -- tonight

Tonight at 8:00 PM on ABC's Extreme Makeover: Home Edition, television viewers get to witness the week-long renovation of a 135-year-old farmhouse belonging to 26-year-old Shawna Farina and her three children.

It's not just the powerful makeover of this drafty Indiana house that makes for a touching story. It's the fact that Farina has been surviving breast cancer for the past 18 months, raising three children, working, raising money, and organizing her local American Cancer Society Relay For Life walks -- while living in an old, drafty farmhouse -- that makes this story truly inspirational.

Inspired by her mother, who was diagnosed with breast cancer when she was a child, Farina became involved with Relay For Life -- a yearly, overnight event held in more than 4,700 communities to celebrate cancer survivorship. And now, in tandem with Farina's extreme makeover, volunteers from 18 different Relay for Life events across southern Indiana have been honoring Farina through Extreme Relay For Life events consisting of five back-to-back 24-hour relays. More than 5,000 people and the cast of crew of the Extreme Makeover: Home Edition participated while construction took place on Farina's house.

It all unfolds this evening -- the story of one courageous young woman raising awareness about breast cancer in the midst of her own battle. And the story of one dedicated bunch of supporters who are building her spirit -- and rebuilding her home.

Mother bravely battles border for son battling leukemia

Luis Carranza is just eight years old. And he is just a few years -- or perhaps a few months -- away from dying as a result of a weakened immune system due to aggressive treatment for leukemia. The same treatment that at one time brought remission for this boy also attacked his central nervous system, caused seizures, brought on terminal and irreversible brain damage, and eventually sent him into a vegetative state. Luis has traveled a rough road -- and so has his mother who illegally slipped him across the Mexican border into the United States in hopes of treatment to save her young son's life.

Guadalupe Carranza did find salvation for her son in a Texas hospital and for more than one year, Luis received chemotherapy and radiation -- and loads of love from staff and volunteers who helped care for him. Guadalupe was not always there for her son, though, because after locating helpful health care and social services, she was deported to Mexico. She tried to return on many occasions and even received assistance from doctors, nurses, social workers, and attorneys who worked to find a legal way to unite Guadalupe and Luis. But not until Luis fell into a coma did efforts pay off.

After negotiation with border and consulate officials, Guadalupe was granted a humanitarian parole visa and legally crossed into the United States on May 8. The visa allowed her 60 days -- but officials agreed to let her stay until Luis passes away. And so she stays -- by her son's bedside where he rests peacefully in a place that gave him a chance at life. A chance his mother says he never would have had in Mexico.

Radio broadcast features message about breast cancer

Beginning today, these words will be broadcast on various local Gainesville radio stations. These words are about breast cancer, about raising money for this serious disease, about Making Strides Against Breast Cancer, about the American Cancer Society. These words are about me. These are my words.

I'm Jacki. I'm someone you know. I'm a mother of two young sons, a wife, a sister, an aunt, a daughter, a friend. I am a freelance writer and a preschool teacher. I like to exercise and scrapbook and watch my little boys enjoy life's simple pleasures. I like pedicures, massages and candles. I'm 36 years old. I'm someone you know -- but I'm not alone.

I was diagnosed with breast cancer almost two years ago. And the American Cancer Society was instrumental in my recovery. I was comforted by their cancer programs and events, soothed by volunteers who called me at home to lend an ear, and educated by American Cancer Society literature and resources.

Join me for our Making Strides Against Breast Cancer walk on Saturday, October 14th, at the North East Park in Gainesville at 7:30 a.m. to help fund breast cancer research. Visit www.cancer.org or call 1-800-ACS-2345 to learn how you can become involved. Because someone you know has breast cancer. I'm someone you know -- I'm a breast cancer survivor -- and with the American Cancer Society, I'm not alone.

Hungry To Be Heard: older hospitalized patients going hungry

Some campaigns just make me sad. UK's Age Concern, a charity that works to promote the health and welfare of older citizens, has launched a campaign called Hungry To Be Heard because it seems nine of of ten nurses do not have time to make sure elderly patients are getting enough to eat during their stay in the hospital. As a result, over half of the elderly patients are at risk for malnutrition. As hospital patients, if the elderly are malnourished, they simply are not going to recover or heal as quickly; they are at greater risk for post-surgical complications and they suffer a higher rate of death.

Continue reading Hungry To Be Heard: older hospitalized patients going hungry

Camp Fantastic offers children with cancer a night of fun

Kids with cancer. It's a sad combination of words and a phrase I can't even imagine facing my own family. And yet if it ever does, I think my goal would be to keep my child's life as childlike as possible -- as hard as it may be while confronting serious life-and-death issues.

Camp Fantastic -- set high in the Blue Ridge Mountains of Virginia -- is one place where kids can be kids. At least for one night. Each year for longer than anyone can remember, volunteers sponsor an evening fiesta with dancing, swimming, games, rides, gifts, and fun for 100 children with cancer. This event, known as Rappahannock Night, because of the camp's location in Rappahannock county, is sponsored by organizations that join efforts to allow children to step back from their diseases and soak up the pleasure of friendship with others who share their experiences.

Camp Fantasic offers kids moments of pure joy -- away from the rigors of cancer and treatment. So they can be kids. Just kids.

Clinical trials running out of cancer patients

When considering treatments for cancer, you want to hit it hard and wipe it out. Sometimes, if you don't get it right the first time, the second try at treatment finds you battling a cancer that has spread. ABC News John McKenzie ran a story Doctors Grapple with Lack of Volunteers that featured lung cancer patient John Ray facing a choice of a standard treatment or enrolling in a clinical trial to test two drugs that researchers believe might be successful for lung cancer treatment.

As Ray explained his choice by saying, "The standard treatment has had good success, and I just didn't want to risk not being able to have that."

According to researchers, for the more than 400 cancer drugs now in clinical trials, only three percent of cancer patients participate in cancer clinical trials. They state that the reason there are not higher numbers of cancer patient participants enrolled in clinical trials is because patients are simply not aware there is a clinical trial they could be enrolled in. Other reasons include risk and convenience.

I would have speculated that the number one reason more cancer patients are not enrolled in clinical trials, is that they make the same decision that Ray made, choosing a known treatment. Taking a chance on an unknown, at a moment when timing might mean everything, is life-threatening risky business. We all want better drugs and better treatments, but in the same spot, would you choose an experimental drug or a standard treatment to fight your cancer? It's a difficult choice.

Elephant Man drug trial victim showing signs of cancer

The story I am about to tell you is horrific and gathered from various news accounts of the event that have been published over the months since it happened.

Last March, six healthy young men volunteered at Northwick Park Hospital, in London as participants in a clinical trial for a drug called TGN1412, designed to treat leukemia, autoimmune and inflammatory diseases. According to the men, they were told by doctors there would be no serious short-term or long-term side effects. They were each paid £2,000. Within hours, the worst that could happen did, and the men were plunged into a nightmare beyond anything they could have imagined.

Continue reading Elephant Man drug trial victim showing signs of cancer

Volunteers coming up short for cancer clinical trials

Just before my treatment for breast cancer began and during a consultation about what chemotherapy drugs I was about to receive, my oncologist stepped away from my exam room to check on something. When she returned to the room, she told me that she was determining whether or not I qualified for a clinical trial. I had no idea what this meant at the time. All I knew was what she told me -- that my prognosis was too good at that moment to qualify for anything currently under study. I did not fit a profile for anything. I was not a candidate for a clinical trial.

I now know that clinical trials are a critical component of research -- they validate a drug's success or weakness and they provide hope for many who may be at the end of their treatment rope and need something new to consider. A clinical trial is a comparison of standard treatments to newer treatments in an effort to discover better methods for the diagnosis and treatment of cancer. Doctors, scientists, and other health professionals conduct these tests according to strict guidelines set by the Food and Drug Administration -- which establishes mandatory guidelines to ensure the maximum safety of the patient.

Clinical trials rely on volunteers -- and sadly, there is a current shortage of patients willing to participate in trials. Experts say that, for the past few decades, just five to 10 percent of all cancer patients in the United States have joined a clinical trial. There is an urgent need -- because the demand for willing, eligible participants far exceeds the supply. Some experts are even recommending that the small pool of candidates that does exist be rationed to only the most important cancer studies -- leaving other studies with no hope for completion. There is no good solution in sight. But the reasons for the shortage are becoming apparent. It's not that patients are unwilling to join. It's that they are unaware, uninformed, not even sure this opportunity is possible -- because doctors are not suggesting trials to their patients. Treatment on a protocol is more demanding for doctors than routine medical care. And it costs doctors to submit to a trial. And trials burden doctors with regulations and paperwork. And some doctors worry about litigation if something experimental goes wrong. So they often don't approach the topic -- and the result is that a wonder drug may sit in a dark freezer because there are not enough people to test it. This potential wonder drug may never show promise, may never save a life, may never see the light of day.

So I guess my oncologist was ahead of the game in this matter -- she compared my diagnosis and prognosis with the needs of all available clinical trials and found that there was not match. Had she not done this, I would have never thought to ask about the possibility -- which is exactly what patients should do instead of waiting for a doctor to make the suggestion. Because it may never happen.

For more information on clinical trials, please visit the Coalition of Cancer Cooperative Groups.

Breast cancer survivors touched by Vera Bradley Designs

Vera Bradley Designs started their Vera Bradley Foundation for Breast Cancer in 1998. Courage, compassion, and commitment are the words that define the fight against breast cancer.

Heidi Floyd and Tammy Bunsold of Fort Wayne both volunteers of the Vera Bradley Foundation were familiar with the company's commitment to breast cancer research long before they learned they had cancer. They now have been on the receiving end of the company's lifesaving work.

Continue reading Breast cancer survivors touched by Vera Bradley Designs

ACS Road to Recovery: needs volunteer drivers

The American Cancer Society offers a service program to cancer patients needing transportation to treatment and home again, called Road to Recovery. The ACS Road to Recovery program depends on volunteers to provide transportation for those in need. Almost every community needs additional volunteers. If you can offer some time each month to help in this program, the American Cancer Society provides a simple training program and the opportunity to meet fellow volunteers. Contact your local ACS office, or call 1-800-ACS-2345.

Study needs Latina sisters to volunteer

An enthusiastic team of researchers are starting a large study as to the causes of breast cancer and need more Latina volunteers.%uFFFDThe study is an important part of a 10-year study, study all ethnic groups, which was launched in October 2005, by the National Institute of Environmental Health Science. They specifically need sisters, in order to determine more clearly the cause of the disease, as sisters share the same genetic make-up and similar environments. The women must be between 35-74 years old, be blood related sisters, one must have breast cancer and one must not. Even if you don't necessarily meet these requirements you are encouraged to enroll, 50,000 women are needed, and at least 2,500 of them should be Latinas. Contact 1-877-4SISTER. or visit www.sisterstudy.org 

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