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Chemo is tough stuff

Chemo is tough stuff. That's what my oncologist told me the day I tracked her down on the phone and told her how awful I felt. I was weak, dizzy, pale, and as close to incoherent as I'd ever been. I was so out of sorts I was convinced I would jump out of my skin at the very moment this doctor implied all I needed was a firm grip on reality.

"Do you have enough support?" she asked. "Yep," I replied. I told her my mom lives right around the corner, my sister just a few miles away. I told her friends were delivering meals and my husband was coming home from work whenever I called for him. Help was just a phone call away, and I had plenty of it. What I didn't have was medical guidance about how my body was tolerating chemotherapy. That's why I needed her.

I hung up the phone that day having accomplished nothing. And I woke up the next morning barely able to walk. I crawled into my kitchen, grabbed a banana, sprawled out on the floor, inhaled some nutrition, and called my mom. I told her I needed to have my blood examined.

My mom transported me to my oncology clinic -- we had a genetic counseling appointment there anyway so it was convenient timing -- and before long, I was hand-delivered a mask and was swiftly escorted to my very own hospital room where I stayed for five days.

The day I was admitted to the hospital, my white blood counts were 700. My body was not tolerating chemotherapy. And I'll never know why my oncologist didn't know this, didn't call me in for an evaluation when so many signs were presenting themselves, didn't offer me more than her steadfast declaration that "chemo is tough stuff."

Yes, chemo is tough. And there are all sorts of expected side effects of the dreaded treatment that patients must endure. But there are many effects patients should not have to suck up, effects that warrant immediate medical attention and can be alleviated with the right intervention.

It took days of antibiotic treatment and a blood transfusion for my body to recover from its chemotherapy attack. I often wonder what would have happened had I toughed it out at home. I suspect the outcome could have been tragic.

If I ever have the occasion to preach about the dangers of chemotherapy, which is what I am doing here, I offer a firm warning about how difficult the treatments can be, how anyone with any string of worrisome side effects should seek medical help immediately, how any oncologist who doesn't respond to an outright cry for help should be fired.

I learned many lessons from my chemo crusade. I learned how to better help myself, and I learned to report right to the emergency room the second time my blood counts plummeted. I learned to demand the care I deserve, and I found an oncologist who is a warm and caring partner in my pursuit of health. And I learned that chemo is tougher than I ever imagined, too tough for some -- like me -- to go it alone.

Cutting edge technology emerges for skin cancer diagnosis

In the not-too-distant future, dermatologists will be able to diagnose skin cancer without ever cutting the skin.

Right now, doctors cut out all suspicious lesions in order to examine them, to determine if they are cancerous or not. But with the development of a new microscope, cells can be examined right on the body -- without cutting.

Moles matter, reported Matt Lauer on Thursday's TODAY show during an interview with a skin cancer expert. Moles are highly associated with melanoma, the deadliest form of skin cancer. So it is critical that each mole is investigated. With this new high resolution technology -- essentially a video biopsy -- a camera will allow doctors to view cells, zero in on the area of concern, and pinpoint the exact cells that make up a mole. If the cells are similar in shape and size and have equal distribution, the mole is normal. If the individual cells are irregular and have no uniform pattern, the mole is abnormal and probably cancerous.

While cutting for biopsy purposes will one day be a thing of the past, cutting will still be necessary if a mole is characterized by cancerous cells. If it's cancer, it must come out. But the video biopsy can be used to map the border and boundaries and will allow for precise removal of the mole.

This technology is still developing -- but one day, perhaps eight to 10 years from now -- doctors will be able to more consistently detect cancer without removal of skin. For now, they must take a piece of the mole and put it under a microscope.

There are definite warning signs of skin cancer. Any mole that is asymmetrical with irregular borders and varied, dark colors should be reported to a physician. Also, any mole that changes in color, shape, or size and is bigger than a pencil eraser is cause for concern.

Cancer by the Numbers: Testicular Cancer

Testicular cancer, cancer in one or both of the testicles, usually occurs in young men and will strike about 8,250 of these men this year. About 370 men will die.

A man's lifetime risk of developing this cancer -- that typically shows up in only one testicle -- is 1 in 300, securing it as one of the less common cancers in the United States. The chances of dying from testicular cancer are 1 in 5,000, making it one of the most curable forms of cancer. Yet it is still the most common form of cancer in men ages 15-34. It is also a cancer commonly characterized by denial and embarrassment. As a result, it is one of the least mentioned cancers.

Continue reading Cancer by the Numbers: Testicular Cancer

Julia Roberts: mysterious mole raises skin cancer awareness

Usually, when we announce a celebrity is raising awareness for cancer, it is the result of a news release that the celebrity has joined a cancer foundation in an effort to lend a higher visibility to the campaign.

In the case of actress Julia Roberts, it appears simply having your photo taken is enough to raise awareness about cancer. At a Hollywood tribute to George Clooney, photographers noticed a mole on her right breast which led to a cancer expert urging Roberts to get it checked out. A dermatologist is suggesting that it looks like a scar resulting from the removal of a mole, according to the movie and entertainment reporting of the incident.

Do you think celebrities ever get fish-bowl claustrophobia from such intense scrutiny and unsolicited advice into their private life? Roberts strikes me as an intelligent woman, and I would wager she is aware of her mysterious mole and has sought medical attention for it.

However unintended as a service to public health information, this latest celebrity gossip about Roberts' right breast does create conversation into what might qualify as a suspicious-looking mole likely to warrant medical attention.

The warning signs of a mole that can cause cancer concern are:



Asymmetry -- One side of the mole does not match the other side of the mole and appears uneven.

Border -- The edge of the mole has a ragged or irregular border.

Color -- The color of the mole is uneven and varies in shade.

Diameter -- A mole bigger than a pencil eraser.

There are three main types of skin cancer: basal cell carcinoma, squamous cell carcinoma and malignant melanoma. Basal cell carcinoma and squamous cell carcinoma are the most common and malignant melanoma can be the most deadly if not caught in its earliest stage. This year in the US, more than one million people will be diagnosed with non-melanoma skin cancer, and 62,190 will be diagnosed with melanoma, according to the American Cancer Society. For more information on skin cancer related posts, visit Melanoma and Skin Cancer.

Some chemotherapy side effects warrant immediate attention

I was in the emergency room the other night with my three-year-old who was experiencing a mysterious leg pain that resulted from a bad case of strep throat. It wasn't serious enough to warrant swift movement from the waiting room to an actual room and we sat in a holding pattern with a crowd of other patients, some of whom were still waiting after Danny had been treated and released. I was told patients are served in the order in which they arrive but also according to the seriousness of their complaints -- which takes me back to the night I was in the ER with a fever, headache, sore throat, and sore gums. The night I was given a mask and was immediately escorted from the waiting room to a private room where doctors and nurses treated me for neutropenia -- a condition caused by chemotherapy and marked by a drop in neutrophil levels, a condition that puts chemotherapy patients at great risk for infection. This was the second time I went to the hospital for neutropenia. Both times I was admitted and treated for five days.

And so sitting in the ER reminded me about how serious chemotherapy side effects can be. And it makes me want to caution all chemotherapy patients to never dismiss the signs that the body is suffering -- to never tough it out with the hope that a good night's sleep or a few days rest will straighten everything out. Because it may not -- and the end result may be tragic.

All chemotherapy patients should be briefed by their medical teams about when to call for medical assistance. For me, a temperature of 100.4 was the magic call-for-help signal. And twice, I called for help -- once in the middle of the night. But any symptoms , and definitely a combination of symptoms, are cause enough for a simple phone call. So don't delay. Don't excuse warning signs that your body is struggling. Don't second-guess your decision to notify a medical professional about your symptoms. Just call. It could save your life.

FDA warning popular prescription drugs counterfeit

Prescription drugs purchased online from Canadian pharmacies were intercepted before they reached the US, and after preliminary laboratory tests were found to be counterfeit. The U.S. Food and Drug Administration (FDA) is warning consumers who may have obtained prescription drugs from Mediplan Prescription Plus Pharmacy or Mediplan Global Health in Manitoba, Canada not to take the medication as it may not be safe.

The drugs in question are Lipitor, Diovan, Actonel, Nexium, Hyzaar, Ezetrol or Zetia, Crestor, Celebrex, Arimidex, and Propecia. Most of the drugs are prescribed for cholesterol disorders and high blood pressure; Actonel for osteoporosis in postmenopausal women; Nexium for gastroesophageal reflux disease; Celebrex for arthritis-related pain; Propecia for male-pattern baldness and Arimidex is a breast cancer chemoprevention medication.

Interestingly, the FDA conducted an investigation last year and discovered that nearly half of the imported drugs they confiscated from four selected countries were shipped to fill orders that consumers believed they were placing with Canadian pharmacies. The drugs did not come from Canada. According to the FDA, 85 percent actually came from 27 other countries around the globe. Buyer beware.

Buying drugs online risky business

Maybe I have been weaving my way through the web for too many years that shades my perspective cynical and jaded but there are few internet destinations I trust outright. Certainly not when it comes to purchasing drugs. Questions of purity, reliability of ingredients and quality immediately come to mind. Equally at issue is the folly of self diagnosis and self prescribing medications for self described illness or malady.

UK doctors have reported that a woman, who diagnosed herself with chronic fatigue syndrome and, on the advice of a neighbor, bought oral steroids from an online pharmacy in Thailand, is going blind as a result of the drugs she took.

Continue reading Buying drugs online risky business

Menopause: handmade hormones women health dangers

For women with estrogen-driven breast cancer suffering the symptoms of menopause, being prescribed traditional hormone replacement therapy (HRT) is out of the question. The risks are simply too great in introducing any estrogen into the body. There are few alternatives and many women decide to suffer with hot flashes, flushes, night sweats and cold flashes, a clammy feeling, sporadic rapid heart beat, irritability, mood swings, sudden tears, insomnia, fatigue, feelings of anxiety, dread, apprehension, difficulty concentrating, disorientation, depression and mental confusion -- without any significant relief. One of the alternatives is personalized natural hormone replacement therapy that is individually mixed specific to each woman's needs.

According to Sydney Menopause Centre at Randwick's Royal Hospital for Women director Dr John Eden, who has diagnosed two women patients with uterine cancer, believes the cancer is linked to natural hormone replacement therapy. Australian doctors are warning women to think twice before taking handmade hormone compounds prepared by chemists, due to the danger that these preparations can lead to elevated hormone levels that could lead to excessive bleeding, increased risk of breast and uterine cancer and blood clots.

"Many women think they are getting a herbal treatment and are shocked to learn they are getting a hormone treatment," stated Dr Eden. Dr Helena Teede, research director at the Jean Hailes Foundation, also added that many women were unaware these preparations were not approved by the Therapeutic Goods Administration.

CBS cares about variety of issues, including cancer

I recently learned that the CBS website features a whole section of public service announcements about various topics -- such as child abduction, depression, HIV/AIDS, menopause, osteoporosis, and heart disease. But what first caught my eye when I was visiting this site was the topic of breast cancer -- because this is the disease I am fighting. And then I spotted a section about colorectal cancer. I was intrigued about a television network's commitment to public health issues. So I kept reading and learned a thing or two about the CBS Cares initiative -- that is also delivered through television spots.

I learned that hundreds of hours have been spent researching each featured subject. And I learned that experts in each field have been consulted and interviewed for accurate and up-to-date information. I found that the basics of each topic are included on the website as well as detailed information that viewers might not otherwise know. For breast cancer, readers can learn about breast cancer in general, about early detection, and about risk factors. And there are video clips of celebrity spokespeople -- like Marg Helgenberger and Melina Kanakaredes -- who share their voices on the topic. For colorectal cancer, readers can gain insight into the prevalence of the disease by region. They can learn about polyps, about warning signs, about treatment options, and about survival rates. And celebrities Stockard Channing and Charles S. Dutton voice their messages about this disease. Doctor interviews and information from the American Cancer Society are sprinkled into the content of these very thorough, informative, and enlightening pages.

Dr. Jay Winsten, Associate Dean and Director of the Frank Stanton Center at the Harvard School of Public Health says, "It is truly unprecedented for a television network to create a website that draws so extensively and effectively on the expertise of numerous world-leaders in pubic health research." And now, CBS has set the precedent.

Dirty beaches threaten health and summer fun

Summer surf and sand. Planning a day trip or weekend vacation at the beach? You could be putting yourself and your family at short-term and long-term health risk. From bacterial pollution to toxic chemicals, some of our beaches are dirty enough to cause serious concern.

In an effort to combat beach pollution, the Milford Environmental Concerns Coalition in Milford Connecticut, hosts a beachwater quality initiative called the Freedom Lawn Contest, recognizing local residents who show their commitment to protecting water quality by growing beautiful lawns and gardens without the use of chemicals, pesticides or fertilizers.

According to Natural Resources Defense Council (NRDC), every coastal state has a beach pollution problem. In 2000, the Beaches Environmental Assessment and Coastal Health Act (BEACH Act) was passed by Congress, requiring the Environmental Protection Agency (EPA) to revise the current health standards by October 2005. The FDA missed the deadline, and indicates it will not be able to finish updating the standards until 2011. The NRDC announced it is suing the EPA for failing to modernize the standards as ordered by Congress six years ago.

The NRDC has published a 349-page report, Testing the Waters 2006: A Guide to Water Quality at Vacation Beaches, available as a PDF document.

Food industry wants cancer warnings for toxic substances in food gone

The Center for Science in the Public Interest (CSPI) has issued a news release alert warning about a controversial bill before the Senate that would effectively eliminate the requirements of the food industry to label foods that threaten our health.

According to the CSPI, the bill called the National Uniformity for Food Act S.3128, is targeting California's Proposition 65, which requires the food industry to put warnings on food products with ingredients that increase cancer risk. Because products are reformulated at a national level, whatever happens to this bill and the effect it will have in the state of California, is predicted to affect a great many other states.

Sometimes, do you just get the feeling you can never relax and feel secure about what is happening around you? The shenanigans of big business seem endlessly daunting at times.

FDA issues high strength hydrogen peroxide warning

The Food and Drug Administration (FDA) has issued a health warning to consumers that drinking high-strength hydrogen peroxide products sold online are extremely corrosive and can lead to stomach irritation or ulcers; and injecting the solution intravenously could lead to blood vessel inflammation, bubbles in blood vessels and potentially life-threatening allergic reaction.

In addition, the FDA has issued warnings to two Texas-based firms, DFWX and Frad 35 Inc., who are illegally selling 35 percent hydrogen peroxide products to treat AIDS, cancer, emphysema and other serious diseases.

To understand the strength of the hydrogen peroxide the FDA is referring to, high-strength hydrogen peroxide is 35 percent while the strength of hydrogen peroxide solution sold over-the-counter for disinfecting wounds is only 3 percent.

According to the news release, Donald Worden, owner of Frad 35 Inc., said he would continue selling his 35 percent hydrogen peroxide product and that his website provided links to information about potential medical uses but that he was not promoting his products for that purpose.

The FDA has issued a warning about this product. You have been warned.

Caregiver tips for facing and overcoming frustration

The Family Caregiver Alliance has written an excellent article in acknowledging that becoming stressed, irritated and frustrated are normal valid emotional responses that occasionally occur when being a caregiver. While the article speaks to a caregiver of someone suffering from Alzheimer's disease, I feel the information they offer applies to all caregivers.

All caregivers are going to feel irritation and frustration at some point -- perhaps not towards the person they are caring for so much as the circumstances and the cancer that led to the need for caregiving. Controlling Frustration is packed with great information, advice and tips.

In combating frustration, the Family Caregiver Alliance offers the following suggestions: learn to recognize the warnings signs of frustration; intervene to calm yourself down physically; modify your thoughts in a way that minimizes stress and learn to ask for help.

The warning signs of frustration might be: shortness of breath; knot in the throat; stomach cramps; chest pains; headache; compulsive eating; excessive alcohol consumption; increased smoking and suddenly feeling a lack of patience.

For ways to prevent frustration from building, they recommend caregivers do three things: make time for yourself; take care of yourself and seek outside support -- because not doing these three things puts the caregiver at greater risk for anxiety, depression, frustration and physical distress that may eventually keep a caregiver from being the caregiver they want to be for their loved one battling cancer.

The article Controlling Frustration is published online in the Strength for Caring Caregiver's Manual.

First cervical cancer vaccine approved

It is official. The first cervical cancer vaccine has been approved by the Food and Drug Administration, FDA. Merck's Gardasil cervical cancer vaccine is the first of several cancer vaccines expected to win approval this year. Gardasil, which targets human papillomavirus, HPV, will be given in three doses over six months. HPV is known to be responsible for the majority of cervical cancer cases.

The cervical cancer vaccine is not without its warnings though. In an earlier post, cervical cancer vaccine protects and promotes cancer, we noted a caution that research has shown the vaccine can actually raise the risk of cervical cancer if the woman is already infected with HPV at the time she receives the cervical cancer vaccine. So, it is not for every woman.

We also noted in an earlier post, cancer vaccine facing Christian Right opposition, there is strong objection to the cervical cancer vaccine based on religious convictions regarding sex and teenage girls. According to experts, girls in their early teens are the most likely to benefit from the cervical cancer vaccine. 

If canned tuna is a risky food -- what fish is safe to eat?

Consumer Reports has completed a review of the FDA testing on mercury levels found in canned tuna and issued new safety concerns. While the focus is on a clear alert for pregnant women and the damage mercury-contaminated tuna can cause to a developing fetus, mercury is also known to have an adverse effect on the immune system of adults. For anyone interested in cancer prevention, a healthy immune system is a vital first-line defense to keeping cancer from developing in the first place. Mercury, once consumed, can stay in the body for years.

Because of the new information provided by Consumer Reports regarding the dangers of canned tuna, and because fish is an excellent cancer prevention food, here is a list of fish that have shown consistently low-levels of mercury during testing and are safe to eat daily. Wild salmon and tilapia can be safely eaten every day. Flounder, sole, mullet, Atlantic mackerel and crab can be safely eaten once a week. In addition, Consumer Reports found fish-oil supplements to be a safe, reliable way to get omega-3 fatty acids. You can check state agencies and the Environmental Protection Agency advisories for contaminant levels of fish caught where you live here.

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